Nicolas Stein & Family

Saturday, May 1, 2010

Riley Visit...

(Snuggling at home)

In April we went to Riley for a couple different visits and all went well...Nicolas got his teeth cleaned for the first time and he really wasn't a fan of it! Poor thing... But other than that Dr.s were saying he looked good. There is possibly a new genetic test that will be available for Nicolas to take in a few months...so we will wait for that...but no other tests are out there now that include his symptoms. Our pulmonologist scheduled another sleep study to see how well he is breathing since his pneumonia in February. That will take place this Tuesday. I'll let you know about the results soon!

Thanks for being patient with my blog! I'm sorry it has been two months! Crazy! We're doing good and still need your prayers!

Much Love,

Felisa

Cakes...Cakes...Cakes...

I have been making cakes lately so I thought I'd share them with you!

There are a few birthday basketball theme cakes that I forgot to take pictures of ...my nephews loved them! I'm also missing a baby shower cake too...and it was cute! O well... Cakes have certainly kept me busy!

(For my friend Terry's wedding)

(For Nicolas, Emili and Tommy's family birthday party)

The last are my favorites! Garrett had an art fair at his school where all the proceeds went to Riley Children's Hospital. They had a bake sale and asked for donations and this was our contribution. Garrett donated an art project in honor of Nicolas to be purchased also. My mom and I took Garrett that night and we all had a great time!

It was a mummy...and Garrett was very proud of it!

Mema and I liked it so much we got into a bidding war over Garrett's art piece!

There were 4 cakes in all...the theme was Around the World so I made Mexican Chocolate cake Riley Wagons...completely edible.

Garrett decorated this cookie at the festival! Pretty talented if you ask me!

Blogging this makes me hungry for cake! :)

Monday, March 1, 2010

Home Sweet Home...again!

Sorry I haven't updated anyone lately...we are home...we came home Friday...and we are adjusting to the new equipment and care...The weekend went well...The doctor wants him on the bi pap all day for a week and only at night (and as needed) for the 2nd week...then we evaluate how he is doing after that...we have already spent 2-4 hrs off the bi pap daily because of a sore on his nose...the pressure the mask is putting on his face has caused it...He doesn't like it when you touch his nose...poor guy...we are working on clearing that up. He is on 2 L of oxygen...He seems to be doing pretty good on that but there are occasional drops in his oxygen levels...so he still needs to get stronger!

It is good to be home...I love my men...G spent some good time with Papa, Lane and Ava this weekend...that helped us and adjusting...Garrett scored 2 points at his basketball game on Saturday...He was fouled shooting and made BOTH free throws...He was so excited! His tournament is this weekend...

I took today off and I think I'll go back tomorrow. We have nursing care every day so I feel comfortable leaving. Jake leaves today for N. Carolina and doesn't get back until Thursday. We're going to miss him!

Much love,

Felisa

Monday, February 22, 2010

Nicolas with his bi-pap...

...Jake says he looks like a fighter pilot!

Update...

He looks good today...Is much more comfortable....They have the bi-pap set at 50%...Which means he is needing less assistance than the night before. He is getting great care and some much needed rest. It sounds like they are already trying to arrange for us to go home...however it is going to take a couple days because they want us to go home with the bi-pap...It will take some time to get insurance approval. They did another x-ray and blood test EARLY this morning...His lungs look better already...The doctor said because the machine is assisting with deeper breaths it is helping to clear the junk out. His white blood cell count is lower than the day before...so his body is trying to fight off infection....he is getting better!

We hope and pray for a speedy recovery!

Much love!

Jake and Felisa

Sunday, February 21, 2010

PICU

Over the weekend Nicolas tried his best to recover but last night we had to turn his oxygen up to 2 1/2 liters and earlier today he had a fever...so we called his doctor and asked him to run some tests to determine if he was the same as when we left Lutheran Hospital or worse...We went to Parkview North and they did an x-ray and blood work....We found out pretty quickly that he has a new infection in his lungs and his white blood cell count is really high....After hearing this we went home and grabbed our bags and headed for Parkview Main hospital. We were admitted to the Ped's Intensive Care Unit...when we arrived they had to raise his oxygen to 4 liters...Now they have put him on bi-pap at 80%...It helps force the oxygen in there a little better...they are currently trying to do his IV...which is always fun...

This is all I know at this point. There are no phones in the PICU so I will try to update the blog as often as possible. Please prayer for our little guy!

Thank you!

Felisa