We took this in our backyard last night!
Jake is pretty proud of himself! It is a lot of work setting up the tripod and hitting the timer button...not bad for an amateur!
Well, Nicolas' monitor is fine and his heart rate only goes low enough to initiate the alarm during a deep sleep. They said it is typical for the heart to slow down a bit now that he is older...initially the machine was to go off if his heart rate dropped below 80...so they adjusted the machine to go off if it dips below 70. Prior to the adjustment it was going off constantly and last night it didn't go off at all! We are thankful for the good news and a good night of sleep!
His spasms are still about once a day. He seems to be tolerating the weaning process so far! During his therapies this week he was pretty sleepy...which is par for the course with Nicolas. BUT...ACTH and his Topamax medication are both capable of making him drowsy even though he has always been rather sleepy. So we will keep an eye out for any changes while we wean and talk to Riley about it during our next visit.
Have a great day and a wonderful fall weekend!
Love,
Felisa
2 comments:
I love this family photo!!! Great job Jake!
You all are so beautiful! Take care!
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