Wednesday, November 12, 2008

ACTH: 5 days to go!

We have 5 days left on ACTH!  For the past week Nicolas has seemed a little cranky.  Mostly he wants to be held still or left alone.  Movement seems to be irritating.  BUT...He is starting to relax his fingers a little more and his eyes are opening more often too.   We are so thrilled to be almost done!  He still has an occasional spasm but not everyday.  On Tuesday we will go to Riley AGAIN to see Sarah McCammon in the neurology department.  We have a long list of questions and hope to have many answers.  We will let you know what we find out.  We are currently contacting a Pediatric Neurologist (by email) at the University of Michigan for information and we are considering Cleveland, who is number 4 in the country for Ped. Neurology, as a future possibility.  We need and want answers.  Hopefully, with God as our guide, we can find some!

Thank you for your continued thoughts and prayers!
Felisa


2 comments:

Anonymous said...

Hi! I was thinking about you and your family today. The pictures are so cute. Love, Kristy Beachy

Anonymous said...

hey felissa i hope everything goes well. hope you and nicolisis doing better and gets well soon. So ya'll have a merry christmas, and a blessed hoiday season. love Your cousin, Phillip.