Nicolas Stein & Family: Our weekend...

Monday, December 8, 2008

Our weekend...

It started off with the Nutcracker! Grandma Peggy watched Nicolas while Jake, Garrett and I had a lovely dinner and enjoyed a beautiful performance...one Garrett (believe it or not) looks forward to every year..."Its tradition...we have to go"...he told us! We purchased Garrett another Nutcracker while there...which brings the grand total to 17!!! Crazy! Then Garrett and I made Christmas cookies at Mema's on Saturday with Jack, Will, Kimra, and Shannon...Jake stayed home with Nicolas. On Sunday Garrett and I made chocolates at home...other than that it was a fairly lazy day.

Throughout the weekend Nicolas had a few moments where he seemed warm and a little congested...and on Sunday he was running a fever...so we gave him Tylenol and that helped. Today I took him in to see his pediatrician and found out Nicolas has an ear infection. So he is on an antibiotic and we are going to give him breathing treatments to help break up the congestion.

Overall he seems fairly well...a little cranky at times but an ear infection will do that to ya! Mostly he is snugly! I love that!

Hopefully this won't last long!

Love,

Felisa

3 comments:

Anonymous said...: Christmas is a joyful time full of blessings. I continue to pray for you and your family. I know you a great mother who is doing an awesome job taking care of her boys. Have a great Christmas!
Love, Kristy Beachy; December 9, 2008 at 6:50 PM
Anonymous said...: Felisa,
You have a beautiful family . You and your family are in my thoughts and prayers . Have a Merry Christmas !!

Megan Woods Schneider; December 15, 2008 at 6:24 AM
Aunt Karen Strom said...: Merry Christmas,
I enjoyed the photos. We just welcomed our new grand-daughter Mayana home from China tonight. So Christmas for the family will be later on after they adjust.
We continue to pray for all of you.
Aunt Karen Strom; December 26, 2008 at 6:33 PM

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If this is your first time reading our blog, here are a few things you may need to know...

This blog page is dedicated to informing our loved ones about our little Nicolas. It all began February 19th 2008. He was born a mere 6 lbs. 2 oz. and within 3 days dropped to 5 lbs. 8 oz. Initially Nicolas was diagnosed with Failure to Thrive and Reflux along with aspirating. He had a surgery at 7 weeks old to correct the reflux. They added a feeding tube at that time to prevent aspirating and improve weight gain as well. Once we checked out of Parkview North we began to see many specialists at Riley Children's Hospital in Indianapolis. After a few trips to Riley and several EEG's later he was diagnosed with Infantile Spasms...something he had been going through since 3 weeks old but was not diagnosed with until he was 6 months old. To try to rid Nicolas of these seizures, Jake and I gave him an inner muscular shot of a hormone steroid called ACTH. This medication dramatically improved his spasms to less than 1 a day. Before that, he would have 8-10 spasms a day. Due to the ACTH medication his immune system was affected and won't be back to normal until June of 2009. As of December 2008, Nicolas' MRI reported that he has a moderate thinning of the white matter that surrounds his brain which attributes to his delays in development. Doctors feel that all of Nicolas' symptoms are due to an underlying cause. Nicolas has gone through a great deal of tests in search of a cause and they have yet to determine what it is. Today Nicolas' weight and height are lining up with growth charts and his seizures are few. Through all of this, you wouldn't think anything has changed for our family. Not that this doesn't weigh heavy on us...it is challenging being patient with medical professionals and with a diagnosis. But through it all...we are so glad God gave him to us! We think he is incredible and love him dearly! With that I leave you this...read our blog so that you too can know more about Nicolas and our journey with him. Continue to pray for our family! Love, The Steins