Saturday, September 20, 2008

ACTH Day 3

Well he had 3 clusters of spasms during day 3.  One at night and 2 during the day.  Usually he has 8-10 clusters a day!  We have even seen improvements in the twitching.  He definitely is getting hungrier and is telling us!  He gets fussy 45 minutes prior to feeding and sucks on his pacifier like crazy!  It is loud and hard smacking...think Maggie Simpson...and when nothing comes out of it, he gets frustrated!  He is bringing his fists up to his chest during his feeds too!  All this is very exciting and we hope it only continues to get better!  As far as the side effects go...we have seen an increase in appetite and he is irritable.  He seems to be irritable more during the evening.  His fussiness is fairly constant until we hook up his drip feed at night.  

It is good to know he is hungry!
  

2 comments:

Anonymous said...

Sweet little nephew - we are praying for you! And your mommy and daddy.

Anonymous said...

What a total Love!!!