ACTH Day 7

I just gave Nicolas his 7th shot. He didn't cry but boy is he squirmy!  Every time we start to wipe his leg with alcohol he starts in with the squirming...it is so cute...even if we are about to give our child a shot!  Yesterday he had two spasms and none overnight.  During our Riley visit we found out that his blood pressure is still a little high.  Nicolas is now on a diuretic medication...since ACTH causes water retention, this will pull the extra water out so that there is less pressure.  We have to go see Dr. O'Brien (Pediatrician) on Wednesday to check and make sure his blood pressure is coming down.  Because of this medication we will have to watch Nicolas' potassium levels too.  If they drop we will add a potassium supplement to his list of medications.  I currently give him 6 in the morning, 1 in the afternoon, and 4 at night.  This morning he had a spasm at 8 am.  Today his Mema Marilyn is going to watch him while I go get a quick hair cut.  And later this afternoon his brother has his last cross country meet.  Garrett has to run a mile.  At the last race he came in 26th out of 60!  He is really loving this running stuff...must take after his Aunt Kimmy!  We are so proud of him and we will let you know how he does!  I've always considered myself so lucky when it came to having Garrett (and Nicolas too!)...but seeing him with Nicolas just melts my heart!  A couple weeks ago we were driving in the car and Nicolas needed to eat.  While Garrett fed him in the back seat, he talked so sweet to him.  Watching in my rear view mirror almost made me cry!  Not only am I lucky to have Garrett and Nicolas but they are lucky to have one another!  God is so good.

Have a great day!

Felisa