Tuesday, June 16, 2009

Meet Nicolas' Respiratory Therapist!

Nicolas just finished a breathing and Percussion treatment with his Respiratory Therapist...so I thought I'd give you an update!

According to Nicolas' growth chart he has stopped growing over the last couple months...so they changed his formula to one that is completely broken down and ready for digestion...this might allow him to absorb more calories and help him to grow.  They also added an amino acid supplement and they are going to draw blood in the morning for more genetic testing.  We started a new medication aimed to rid the episodes that look like seizures (but aren't)...cross your fingers...say your prayers!  We will not be pulling any teeth this week...we need to schedule a visit with the dentist at the clinic 1st, then we'll discuss a plan.  As far as Nicolas and his scoliosis...we have to schedule a visit with Orthopaedics at the clinic once we are discharged ...and we are still trying to get the equipment specialists up here to fit Nicolas for his wheel chair and other positional tools...but there is still plenty of time for that.  On Thursday they are planning to do a skin biopsy for Mitochondrial testing...so I feel that we will know more about when we will be discharged on Friday.  In the morning we plan to request another sleep study for Nicolas...I'll tell you more about that later!

It's late...I'm going to turn on my ipod, take some Advil and try and get comfortable in my chair/bed.
Love to all!
Felisa

3 comments:

Anonymous said...

Nicolas continues to be in our thoughts and prayers! Hope you get some answers. Have a safe trip home!
The Hoovers

Sara said...

Thinking about all of you and praying for you! Please call and let me know if I can do anything. I can come hang out Thursday morning if you want company--give me a call!
Love you!
Sara

Aunt Karen Strom said...

We continue to pray for wisdom for you and the medical team. I am still asking the Lord for His healing touch on Nicolas and for peace for you, his family.
Love you,
Aunt Karen